Book club went off great.  We had a really good turnout and enough of the attendees participated to make it run pretty smoothly.  I am actually looking forward to the next one in six weeks. The Coloplast convex barrier has held up for 18 hours now and hopefully will go the distance.  I definitely feel […]

Today went pretty well.  Mostly it was a normal work day.  I went into the office instead of working from home and in the plus column my car started right off with no problems. Most of the day was consumed by meetings and reviewing a document.  It is shocking how quickly a day can be […]

I’m writing this one early since I have much reading to do before bed. I woke this morning as usual feeling fine and ready to hit a new day.  It was 7AM, so I had at least 2 hours until the nurse would visit to get showered, make and eat breakfast and get working. The […]

Wow, so that all happens really fast.  Bought it yesterday, delivered and setup today. Other than that it was an uneventful day.  It was a little warmer but still chilly for San Diego, so I spent the bulk of the day inside. Isabella seems to love the new mattress.  She isn’t even fussed when I […]

I pushed my luck a bit on the barrier and it was a mistake.  It was not a horrible catastrophe, but it was a bit of a mess.  Last night would have been the 3 day point, but I thought I could make it til morning.  I was wrong, and woke up about 6 AM […]

Today’s highlight was the turning in of the infusion pump and freedom from the box for another 10 days.  The treatment went well so far and other than being tired, I still feel fine. The cold sensitivity continues, and it doesn’t help that we are in a San Diego cold snap ( high temperature today […]

Long day today.  The steroid that they give me during the treatment must have had some extra oomph this time.  I woke up at 4AM and wasn’t tired so I made breakfast and got started working from home around 5AM.  I worked that way for about 4 hours, then showered and headed in for a […]

Today was day 1 of the third treatment.  It pretty much went the same as the other treatments. I arrived for my 8AM appointment and was taken to the treatment area pretty quickly.  Once there I chose the same chair I have been using from the beginning and the nurse started my process.  Since this […]

The highlight of today was an appointment with my surgeon.  To understand this story I need to give you a little back story for context. On Jan. 5 I went under the knife for what we thought would be a laparoscopic procedure to remove the tumor that is creating a blockage in my transverse large […]

Today went pretty smooth. The nurse visited and we discussed discharging me from the home care after next weeks visit.  I haven’t really needed her other than for an occasional question about caring for aggrieved skin near my stoma site. Tomorrow I see the surgeon for a follow up.  I am hoping to get some […]